ALK+ Blog/News
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Pediatric ALK Spotlight Interview with mother and caregiver Ashley Sitorius, Hampstead, North Carolina
We interviewed , mother and caregiver of 11-year-old Deliah, who was diagnosed with ALK-positive brain cancer when she was just 7. ALK can actually appear in many pediatric cancers as a driver mutation. Among many things, we discussed Deliah’s (and the family’s) journey in navigating this devastating diagnosis, how she has been able to advocate…
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“My Favorite (Turkey) Bolognese:” Healthy Recipe by ALKie & Chef Juli Posner
This comforting soup makes a delicious and savory soup that’s perfect for those cold busy nights in the Fall and Winter when butternut squash is also in season. *feel free to substitute sweet pork sausage in this recipe if spicy isn’t your thing! One pot – 30 minutes start to finish!
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Q & A Transcript: 2022 ALK Summit with Dr. Schenk and Dr. Camidge
There was an excellent Q&A session with Dr. Schenk and Dr. Camidge at the 2022 ALK Summit in Denver. Colin Barton, (Member of our Medical Committee), has graciously taken the time to list the questions and times on the video recording that is available on our ALK Positive Youtube Channel.
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Oncolytic Virus Research Collaboration: Memgen Inc., UMichigan, and ALK Positive Inc.
The ALK Positive NSCLC Research Acceleration Committee (RAC) systematically reaches out to selected biotech companies with NSCLC treatments in development and/or trial. In February of 2022, RAC member Ray Hall (father to patient Summer Farmen) wrote a letter to the CEO of Memgen Inc., introducing us and asking for a get-acquainted Zoom meeting, which occurred…
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The Low Country Boil: Receipe by fellow ALKie and Chef, Juli Posner
This comforting soup makes a delicious and savory soup that’s perfect for those cold busy nights in the Fall and Winter when butternut squash is also in season. *feel free to substitute sweet pork sausage in this recipe if spicy isn’t your thing! One pot – 30 minutes start to finish!
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Dan and Brittany Wilson
Both Dan (the ALK patient) and Brittany (the spouse-caregiver) are actively involved in ALK Positive. We interviewed them both in their home city of Philadelphia, Pennsylvania, about their background, their life with ALK, and about how their volunteer activity has enriched their lives.
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ALK Positive and Lung Cancer Research Foundation: Expanding Our Research Partnership
June 15, 2023 – ALK Positive and the Lung Cancer Research Foundation (LCRF) are pleased to announce a groundbreaking research partnership to fund $2 million in ALK-positive lung cancer research over the next three years. As the leading patient-led organization in ALK-positive cancer, ALK Positive is excited to spearhead this innovative initiative and raise funds to…
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Clinical Trials for ALK-positive Cancers – Are They for Me?
Clinical trials have been instrumental in developing all treatments for ALK-positive cancers. Many of our longest survivors have participated in clinical trials of treatments that are now the standard of care.
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Instructions and Call for Patient Participation in The University of Michigan Judith Tam ALK Lung Cancer Research Initiative
The University of Michigan Judith Tam ALK Lung Cancer Research Initiative is recruiting ALK positive NSCLC patients for extensive and sustained studies of the course of each individual’s disease. Their research is enabled by the continuing donation of patients’ blood samples, tumor tissue samples, and/or malignant fluids, as each may be available over time for…
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Patient Spotlight: Marc Rosenzweig, West Bloomfield, Michigan
We interviewed Marc Rosenzweig, a long-term ALK patient and founder of the ALKtALK program that has become a wonderful resource bringing the ALK community closer. 1. Tell us a little about yourself, your personal and professional background, and your journey with ALK-positive lung cancer so far. I am a proud father of two sons, Jacob…
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Marinated Skewered Chicken Recipe by Chef and Fellow ALKie, Juli Posner
This delicious marinated skewered chicken and vegetables is SO easy to throw together. I call it a non-recipe recipe, since anyone can do this!! Just leave yourself a few hours to marinate all the components. The longer they marinate, the better they are! Cubed chicken breasts (or chicken thighs, depending on preference) and vegetables marinated…