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ALK+ Blog/News

  • Terry McGowan, Ken Culver and Dr. Jesse Boehm.
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    Break Through Cancer and ALK Positive, Inc. Team Up to Conquer ALK-Positive Lung Cancer with a $2 Million, Multi-year, Research Partnership

    Break Through Cancer announces a new partnership with ALK Positive Inc. (ALK Positive), a foundation funded by patients with ALK-positive lung cancer and their families. ALK Positive and Break Through Cancer are joining forces to fund a new initiative in lung cancer research with the hope of creating durable responses and cures for patients with…

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  • A map of earth with a web of lines showing global connectivity.

    The Global Landscape of Research: ALK-Positive Cancer Therapeutic Trials Worldwide

    In the ever-evolving arena of ALK-positive cancer therapies, clinical trials offer patients not only cutting-edge interventions but also a chance to contribute to the advancement of ALK cancer treatment. In examining international ALK cancer trials, we uncover both challenges and opportunities for those seeking innovative treatments beyond conventional options. ALK Positive is the first foundation…

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  • Spinach and feta stuffed flounder in a backing dish.
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    Spinach and Feta Stuffed Flounder A recipe by chef and fellow ALKie, Juli Posner (@apracticalchef)

    This stuffed flounder is a mix of flaky white fish and a creamy delicious filling, easy to make for anytime but special enough to serve if you have company.

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  • Angel Qin portrait.
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    An Interview with Dr. Angel Qin: “From Leukemia to ALK+ NSCLC: Finding a New Way to Overcome Drug Resistance”

    Editors Note: This interview is by Juhi Kunde, Director of Patient Gateways and Science Marketing at LUNGevity and was orginally posted on their web site on March 5, 2024. Dr. Angel Qin, MD, medical oncologist at the University of Michigan and one of the recipients of our ALK Positive Lung Cancer Research Awards. ALK Positive,…

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  • Xavier Chen.

    PATIENT SPOTLIGHT: Xavier Chen, Paris, France

    1. Tell us a little about your background – personal and professional – and your journey with ALK+ lung cancer so far. I am a 61-year-old French citizen of Chinese origin, now living in Paris. Beforemy diagnosis, I was living in Chiangmai, a northern city of Thailand, in semi-retirement after a very fulfilling career successively…

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  • Irfan Gilani.

    Introducing ALK Positive Denmark An interview with President, Irfan Gilani

    Can you share with our readers the founding story of ALK Positive Denmark? What inspired the establishment of the organization? ALK Positive Denmark, founded on October 6, 2022, stands as a dedicated advocacy group for ALK-positive lung cancer patients and their families. The genesis of this initiative can be traced back to Heidi Vaarbjerg, who…

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  • Jeff and Ellen Strum.
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    First two weeks on NVL-655 clinical trial: Field Research for the Clinical Trials Committee

    I started on the Phase II NVL-655 trial on March 1st, 2024, at UC Davis’s Sacramento campus, a seventy-five-mile ride from my house. I had pre-registered with Dr. Jonathan Riess’s trial coordinator in December, sending records from my oncologist electronically, and answering a lot of questions. They wanted a record of my initial cancer, and…

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  • Beef stew.

    Cozy Slow Cooker Beef Stew By Chef and fellow ALKie, Juli Posner

    Cozy Slow Cooker Beef Stew By Chef and fellow ALKie, Juli Posner I think once you try this virtually fuss-free, oven-baked method, you will be sold by how delicious it is. Don’t be afraid of the wacky combination of ingredients. I promise it works. It can be made two days ahead for best results!!

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  • Unlocking Hope: Navigating your Path to ALK-Positive Lung Cancer Clinical Trials

    Participating in a clinical trial can provide hope for those with ALK-positive lung cancer, offering a glimpse into the realm of cutting-edge treatments. Understanding eligibility criteria can be paramount for those seeking to participate in a clinical trial. Here we will highlight some of the opportunities and challenges of clinical trial eligibility

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  • Exterior of University of Michigan's Rogel Cancer Center.
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    University of Michigan Biopsy and Organoid Drug Screening Experience

    I’m writing this on the return flight from the University of Michigan, where I underwent a thoracic biopsy for three lymph nodes that have been lighting up in my recent PET scans. As I am the ALK Positive patient advocate on the Judith Tam ALK NSCLC Research Initiative Scientific Advisory Board, l thought I’d do…

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  • Dr. Sydney Barned.

    Dr. Sydney Barned

    We interviewed Dr. Sydney Barned – a medical doctor, ALK patient, and very active lung cancer advocate. We learned about her personal journey with ALK+ lung cancer, how lung cancer has also affected other members of her family, and, more importantly, her tireless involvement in lung cancer advocacy, some of which has already resulted in…

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  • graphic concept showing vials and syringes and the words "Clinical Trial."

    ALINA Trial Unveils a Paradigm Shift in the Battle Against Early Stage, Resectable ALK-Positive Lung Cancer

    One of the challenges in our community has been the treatment of earlier stages of ALK-positive lung cancer, including stages IA through 3A. Historically, we’ve faced a lack of definitive guidelines for addressing the illness that represents 30-40% of the total ALK lung cancer population. Patients in these stages are traditionally treated with surgical tumor…

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