ALK+ Blog/News
- ALK Experts
- ALK International
- ALK Positive News
- Clinical Trials
- Government
- Living with ALK+
- Nutrition
- Patient & Care Partner Stories
- Powered By Patients
- Recipes
- Research
-
Patient Spotlight: Rick Meyer
We interviewed long term survivor Rick Meyer on his experience with multiple ALK TKIs, his participation in the Nuvalent clinical trial for almost two years and counting, and his overall attitude to life as a thriving ALK patient.
-
Stronger Every Day: How Movement and Community Keep Me Going
When Michele walked into PVolve, she was looking for a way to reconnect with her body after a life-changing cancer diagnosis. What she found was so much more—a community that believed in her, showed up for her, and helped her raise nearly $5,000 for ALK-positive lung cancer research. This is her story of movement, resilience,…
-
Trivia for a Cure: How Nikki Turned a Night of Fun into a Force for Research
Nikki never imagined hosting a fundraiser in her name—let alone speaking publicly about her diagnosis. But when her community rallied around her, Trivia Night for a Cause became more than an event. It became a moment of courage, connection, and clarity. Learn how Nikki raised over $6,000 for ALK research and helped start an annual…
-
$8 to the Greats: Because Great Things Start Small
Suzanne believes in the power of small gifts and strong communities. That’s why she launched 8 to the Greats—a way for anyone to give $8 a month to fund lifesaving ALK research. Because we’re truly stronger together.
-
A Journey of Purpose: How One Traveler Turned Airfare into Hope
After two decades in the travel industry, Keng was diagnosed with ALK-positive lung cancer—and everything changed. Blending his professional expertise with a new sense of purpose, he created HealthcareFares.com, a platform that lets travelers save on flights and fund cancer research at no extra cost.
-
Patient Spotlight: Celeste Olinger Denver, Colorado, USA
We interviewed long-term ALK survivor, Celeste Olinger, about her somewhat unusual cancer journey, her life, and her new normal since her diagnosis that still keeps her grounded and allows her to thrive.
-
Clinical Trials for ALK-positive Cancers – Are They for Me?
Should I enroll in a clinical trial for ALK-positive cancer? The decision to enroll in a clinical trial requires a real understanding of what is being studied and how you will participate in the study. It is important to remember that clinical trials have been instrumental in developing all treatments for ALK-positive cancers. Many of…
-
Protect Funding for Lung Cancer and ALK-positive Cancer Research
ATLANTA, February 20, 2025 – The ALK Positive organization stands with patients, families, healthcare providers, researchers, and the broader medical community in our mission to increase survival for those at risk, diagnosed, and living with ALK-positive cancer. We are deeply concerned with the devastating impact that severely and suddenly reducing the budget of the National…
-
RAISE YOUR VOICE AS A CANCER PATIENT: Advocacy Letter Template
Dear Senator (or Congress woman/man) XXXXX, As one of your constituents from XXXXXX, I wanted to let you know that I am deeply concerned about the current administration’s funding cuts to NIH. For the past XXX years I have been living with stage 4 lung cancer – ALK positive – a subtype that has FDA…
-
ALK Positive Announces Formation of Distinguished Scientific Advisory Board
ATLANTA, February 13, 2025 – ALK Positive Inc, a patient-driven organization that seeks a cure for ALK-positive cancer, today announced the establishment of a Scientific Advisory Board (SAB) comprised of renowned experts in ALK-positive cancer to guide the organization’s research initiatives and strategic direction. The formation of the SAB underscores ALK Positive’s commitment to funding the…
-
Dana Querido
We interviewed patient and ALK Positive volunteer Dana Querido about her journey with ALK+ lung cancer and her active involvement with the ALKtALK Healing Arts, Death Cafe, and more.
-
Introducing ALK Positive UK: Founded by Debra Montague
Debra Montague was diagnosed in October 2016 and joined the world-wide ALK Positive Facebook support group. She came to realise that there was a need for a UK group to address issues that are specific to UK patients, e.g. the National Health Service, the Driving Licence Regulator and the Drugs Approval Regulator. In July 2018,…