ALK+ Blog/News
- ALK Experts
- ALK International
- ALK Positive News
- Clinical Trials
- Government
- Living with ALK+
- Nutrition
- Patient & Care Partner Stories
- Powered By Patients
- Recipes
- Research
-
$8 to the Greats: Because Great Things Start Small
Suzanne believes in the power of small gifts and strong communities. That’s why she launched 8 to the Greats—a way for anyone to give $8 a month to fund lifesaving ALK research. Because we’re truly stronger together.
-
A Journey of Purpose: How One Traveler Turned Airfare into Hope
After two decades in the travel industry, Keng was diagnosed with ALK-positive lung cancer—and everything changed. Blending his professional expertise with a new sense of purpose, he created HealthcareFares.com, a platform that lets travelers save on flights and fund cancer research at no extra cost.
-
Patient Spotlight: Celeste Olinger Denver, Colorado, USA
We interviewed long-term ALK survivor, Celeste Olinger, about her somewhat unusual cancer journey, her life, and her new normal since her diagnosis that still keeps her grounded and allows her to thrive.
-
Clinical Trials for ALK-positive Cancers – Are They for Me?
Should I enroll in a clinical trial for ALK-positive cancer? The decision to enroll in a clinical trial requires a real understanding of what is being studied and how you will participate in the study. It is important to remember that clinical trials have been instrumental in developing all treatments for ALK-positive cancers. Many of…
-
Protect Funding for Lung Cancer and ALK-positive Cancer Research
ATLANTA, February 20, 2025 – The ALK Positive organization stands with patients, families, healthcare providers, researchers, and the broader medical community in our mission to increase survival for those at risk, diagnosed, and living with ALK-positive cancer. We are deeply concerned with the devastating impact that severely and suddenly reducing the budget of the National…
-
RAISE YOUR VOICE AS A CANCER PATIENT: Advocacy Letter Template
Dear Senator (or Congress woman/man) XXXXX, As one of your constituents from XXXXXX, I wanted to let you know that I am deeply concerned about the current administration’s funding cuts to NIH. For the past XXX years I have been living with stage 4 lung cancer – ALK positive – a subtype that has FDA…
-
ALK Positive Announces Formation of Distinguished Scientific Advisory Board
ATLANTA, February 13, 2025 – ALK Positive Inc, a patient-driven organization that seeks a cure for ALK-positive cancer, today announced the establishment of a Scientific Advisory Board (SAB) comprised of renowned experts in ALK-positive cancer to guide the organization’s research initiatives and strategic direction. The formation of the SAB underscores ALK Positive’s commitment to funding the…
-
Dana Querido
We interviewed patient and ALK Positive volunteer Dana Querido about her journey with ALK+ lung cancer and her active involvement with the ALKtALK Healing Arts, Death Cafe, and more.
-
Introducing ALK Positive UK: Founded by Debra Montague
Debra Montague was diagnosed in October 2016 and joined the world-wide ALK Positive Facebook support group. She came to realise that there was a need for a UK group to address issues that are specific to UK patients, e.g. the National Health Service, the Driving Licence Regulator and the Drugs Approval Regulator. In July 2018,…
-
My Thoracentesis Experience
During the Thanksgiving holiday, over a liter of pleural fluid was withdrawn via needle from my right chest space. I had just finished my third cycle of Carboplatin, Pemetrexed, and Lorlatinib after almost ten years of TKIs alone. The fluid first became evident on a PET scan and was classified as moderate effusion. I didn’t…
-
My Family’s Favorite Oven-Baked Brisket: By Chef and fellow ALKie, Juli Posner
I’m sure there are a lot of people in many parts of the country that wouldn’t dream of making a brisket in the oven. But growing up in New York on Long Island, we never owned a smoker. I think once you try this virtually fuss-free, oven-baked method, you will be sold by how delicious…
-
Amanda Bialack-Stewart
Amanda has been actively involved in ALK Positive, Inc. through creating and leading the Young ALKies Group. We interviewed her in Los Angeles, California about having been diagnosed right after giving birth to twins at the age of 36, how she manages to balance family, work, fun, and self-care as a patient.