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Tag: patient

  • Honoring the memory of Linnea Olson: long-term ALK survivor, clinical trial pioneer, fierce lung cancer advocate, loving mother of three

    The ALK world and more broadly the lung cancer world lost one of its most precious and vocal voices on November 15, 2021, ironically during Lung Cancer Awareness Month and only days before her 62nd birthday. Linnea Olson set a paradigm in the treatment of lung cancer and left a void that is hard to…

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  • Honoring our Caregivers

    November is…National Family Caregivers Month The majority of those impacted by lung cancer are aware November is Lung Cancer Awareness Month, but in 2014 President Barack Obama created a proclamation to recognize National Family Caregivers Month in the month of November too. Statistically speaking, it is estimated that 4.6 million people in the US alone…

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  • ALK Positive Micro-Documentary “Stronger Together” Available on Youtube

    You can share this powerful micro-documentary featuring four women living with ALK-positive lung cancer, as well as leading lung cancer researchers, Dr. Christine Lovly and Dr. Vincent Lam. The documentary resides on the ALK Positive YouTube page here And here are two other Video clips that did not make the final video but have a…

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  • Patient Spotlight: Yuhui Hurng, Signapore

    EDITORS NOTE: Sadly, Yuhui Hurng passed away. She was the mother of two young children. She was an active and eloquent contributor to our Support Group Community. She is remembered for her authentic and open posts that helped many.   We interviewed our member Yuhui Hurng about her journey with ALK-positive lung cancer, her experience with…

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  • Honoring our Volunteers

    Our volunteers are our driving force. We could not have been where we are without them. The least we can do is honor and thank them for their contribution to the ALK Positive Support Group and ALK Positive, Inc. (our registered 501c3 nonprofit). Below is a list of all the people who are currently generously…

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  • Patient Spotlight: Debra Montague, Watchet, United Kingdom

    In this very interesting interview, Debra Montague, Chairman and Founder of ALK Positive UK (https://www.alkpositive.org.uk/), talks to us about starting and establishing the UK-based charity from the ground up, their advocacy efforts, their work on lessening treatment and testing disparities with other developed countries, and her future hopes and dreams for all ALK-positive patients in…

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  • The Caregiver Journey

    The Center for Disease Control (CDC) defines the caregiver as providing care to people who need some degree of ongoing assistance with everyday tasks on a daily basis. It is not surprising the CDC clarifies caregiving is a public health priority; noting the health of caregivers is at risk. Over the years, in conversation with…

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  • Patient Spotlight: Jamie Gibbard, Kent, United Kingdom

    Meet Jamie, one of our international group members and an active volunteer for ALK Positive. Jamie was interviewed about his journey with lung cancer, sharing how volunteering for a purpose that can improve outcomes for our members worldwide has helped him see his diagnosis in a different light. 1) Tell us a little about your…

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  • Patient Spotlight: Milestones after a stage IV diagnosis

    Featured: In this newsletter, we are celebrating milestones. A cancer diagnosis (even at stage IV), while devastating, can often open up new doors and lead patients to a new calling in life. We interviewed Shyreece who has written and published two books; Juanita who has become a foster parent together with her husband; and Cori…

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  • Fundraiser Spotlight Series

    EDITOR’S NOTE: Starting with this newsletter, we are launching a new “Fundraiser Spotlight Series”, featuring some of our top fundraisers in recent years. The idea is for members to get to know our fellow ALK members better and to get inspiration and ideas for how we, too, can fundraise for research through ALK Positive, Inc.…

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  • Patient Spotlight: Vangie Lim, Gold Coast, Queensland, Australia

    We interviewed member and fellow ALK patient, Vangie Lim, about her journey with lung cancer and her experience participating in a unique clinical trial that is currently only open in Australia. Vangie is also very active in advocacy and is the founder of The Evangeline Lim Lung Cancer Foundation, the first lung cancer nonprofit in…

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  • Patient Spotlight: Hanka Mosher, British Columbia, Canada

    Many ALK Positive members know Hanka Mosher through her Zoom yoga classes on ALKtALK. Did you know that Hanka is also an avid skier and passionate about health and wellness in general? We asked her about working her way back up to a good level of fitness following her diagnosis and lobectomy, and we picked…

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