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Category: Patient & Care Partner Stories

  • A couple bike riding on a mountain road.
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    Introducing ALK Positive Italia An interview with Founder, Patty Saccenti

    ALK Positive, Inc has introduced a section in our newsletter to feature international (non-US) ALK patient groups/organizations. If you would like your group/organization to be featured in a future newsletter, please contact Duncan Preece at duncan.preece@alkpositive.org In this issue, we are introducing ALK Positive Italia and have interviewed the founder, Patty Saccenti.

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  • PATIENT SPOTLIGHT: Debbi Martinez, New Jersey, USA

    Member and fellow ALKie Debbi Martinez is the volunteer working behind the scenes with ALK Positive’s Kindful fundraising platform and doing a great job at that. For this year’s Lung

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  • Ruby Blow, Patient Advocate

    PATIENT SPOTLIGHT: Ruby Blow, Atlanta, GA, USA

    Please enjoy our interview with the wonderful and courageous Ruby Blow! 1) Share with us a little bit about yourself, including your personal life, your professional background, and your journey

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  • PATIENT SPOTLIGHT: Emily Venanzi, Newton, Massachussetts

    Emily Venanzi is an active member of our Medical Commitee (with particular involvement in the Research Review Panel selecting which research projects to fund) as well as our Research Accelaration

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  • Nancee Pronsati, Patient and Vice President of ALK Positive Inc.

    PATIENT SPOTLIGHT: Nancee Pronsati, Golden, Colorado, USA

    Nancee has been an ALK patient for the last 6 years, and she is an incredible member of the ALK community who is devoting her time and resources to multiple

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  • PATIENT SPOTLIGHT: Dr. Charelle Samuels, Pittsburg, Pennsylvania

    EDITORS NOTE: Sadly, Dr. Charelle Samuels  passed away on October 8, 2022.  Charelle was a valued volunteer for the ALK Positive Healing Arts program and hosted roundtable groups.  She brought

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  • Patient Spotlight: Colin Barton, Denver, Colorado

    Editor’s Note: We had a discussion with long-time member, Medical Committee Chair, Board member and donor, Colin Barton, about his background and personal history, his attitude to life, the achievements

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  • Honoring the memory of Linnea Olson: long-term ALK survivor, clinical trial pioneer, fierce lung cancer advocate, loving mother of three

    The ALK world and more broadly the lung cancer world lost one of its most precious and vocal voices on November 15, 2021, ironically during Lung Cancer Awareness Month and

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  • Honoring our Caregivers

    November is…National Family Caregivers Month The majority of those impacted by lung cancer are aware November is Lung Cancer Awareness Month, but in 2014 President Barack Obama created a proclamation

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  • ALK Positive Micro-Documentary “Stronger Together” Available on Youtube

    You can share this powerful micro-documentary featuring four women living with ALK-positive lung cancer, as well as leading lung cancer researchers, Dr. Christine Lovly and Dr. Vincent Lam. The documentary

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  • Patient Spotlight: Yuhui Hurng, Signapore

    EDITORS NOTE: Sadly, Yuhui Hurng passed away. She was the mother of two young children. She was an active and eloquent contributor to our Support Group Community. She is remembered

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  • Honoring our Volunteers

    Our volunteers are our driving force. We could not have been where we are without them. The least we can do is honor and thank them for their contribution to

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