A researcher in a lab looking at a tablet.

Category: Patient & Care Partner Stories

  • Andrej Krivda, patient

    PATIENT SPOTLIGHT: Andrej Krivda, Wettingen, Switzerland

    We interviewed fellow ALKie Andrej Krivda on his very interesting journey with ALK+ lung cancer and all the unexpected twists and turns he’s had to navigate since diagnosis. Andrej is the very first person to enter the Nuvalent NVL-655 clinical trial in Spain and one of the first patients to take part in the trial…

    Read More

  • A couple bike riding on a mountain road.
    ,

    Introducing ALK Positive Italia An interview with Founder, Patty Saccenti

    ALK Positive, Inc has introduced a section in our newsletter to feature international (non-US) ALK patient groups/organizations. If you would like your group/organization to be featured in a future newsletter, please contact Duncan Preece at duncan.preece@alkpositive.org In this issue, we are introducing ALK Positive Italia and have interviewed the founder, Patty Saccenti.

    Read More

  • PATIENT SPOTLIGHT: Debbi Martinez, New Jersey, USA

    Member and fellow ALKie Debbi Martinez is the volunteer working behind the scenes with ALK Positive’s Kindful fundraising platform and doing a great job at that. For this year’s Lung Cancer Awareness Month, we wanted to honor a volunteer that is not visible by being at the forefront of operations, but is just as invaluable…

    Read More

  • Ruby Blow, Patient Advocate

    PATIENT SPOTLIGHT: Ruby Blow, Atlanta, GA, USA

    Please enjoy our interview with the wonderful and courageous Ruby Blow! 1) Share with us a little bit about yourself, including your personal life, your professional background, and your journey with lung cancer so far. I am a sister, an aunt, and a professional counselor. I have my own practice. I stopped seeing therapy clients,…

    Read More

  • PATIENT SPOTLIGHT: Emily Venanzi, Newton, Massachussetts

    Emily Venanzi is an active member of our Medical Commitee (with particular involvement in the Research Review Panel selecting which research projects to fund) as well as our Research Accelaration Committee. As a patient, she is an interesting case, as she “jumped” straight on a clinical trial as her first line of treatment, which she’s…

    Read More

  • Nancee Pronsati, Patient and Vice President of ALK Positive Inc.

    PATIENT SPOTLIGHT: Nancee Pronsati, Golden, Colorado, USA

    Nancee has been an ALK patient for the last 6 years, and she is an incredible member of the ALK community who is devoting her time and resources to multiple projects and endeavors within ALK Positive, Inc. This year, she is the Chair of ALK Summit 2022 which we are all looking forward to. We…

    Read More

  • PATIENT SPOTLIGHT: Dr. Charelle Samuels, Pittsburg, Pennsylvania

    EDITORS NOTE: Sadly, Dr. Charelle Samuels  passed away on October 8, 2022.  Charelle was a valued volunteer for the ALK Positive Healing Arts program and hosted roundtable groups.  She brought her insight and wisdom as a Psychotherapist to the attendees and was a patient and kind group leader.   Dr. Charelle Samuels is an ALK patient…

    Read More

  • Patient Spotlight: Colin Barton, Denver, Colorado

    Editor’s Note: We had a discussion with long-time member, Medical Committee Chair, Board member and donor, Colin Barton, about his background and personal history, his attitude to life, the achievements of the Medical Committee which he has been chair continuously since 2017, and his hopes and excitement for the future of ALK-positive cancer treatments. 1)…

    Read More

  • Honoring the memory of Linnea Olson: long-term ALK survivor, clinical trial pioneer, fierce lung cancer advocate, loving mother of three

    The ALK world and more broadly the lung cancer world lost one of its most precious and vocal voices on November 15, 2021, ironically during Lung Cancer Awareness Month and only days before her 62nd birthday. Linnea Olson set a paradigm in the treatment of lung cancer and left a void that is hard to…

    Read More

  • Honoring our Caregivers

    November is…National Family Caregivers Month The majority of those impacted by lung cancer are aware November is Lung Cancer Awareness Month, but in 2014 President Barack Obama created a proclamation to recognize National Family Caregivers Month in the month of November too. Statistically speaking, it is estimated that 4.6 million people in the US alone…

    Read More

  • ALK Positive Micro-Documentary “Stronger Together” Available on Youtube

    You can share this powerful micro-documentary featuring four women living with ALK-positive lung cancer, as well as leading lung cancer researchers, Dr. Christine Lovly and Dr. Vincent Lam. The documentary resides on the ALK Positive YouTube page here And here are two other Video clips that did not make the final video but have a…

    Read More

  • Patient Spotlight: Yuhui Hurng, Signapore

    EDITORS NOTE: Sadly, Yuhui Hurng passed away. She was the mother of two young children. She was an active and eloquent contributor to our Support Group Community. She is remembered for her authentic and open posts that helped many.   We interviewed our member Yuhui Hurng about her journey with ALK-positive lung cancer, her experience with…

    Read More