Join Marc Rosenzweig and ALK experts for ALKtALK on Sundays this month. On Jan 10th, Colin Barton will be asking Dr. Alice Shaw questions that come from you. And again on Sunday, Jan 24th, we will host Dr. Christine Lovly for a similar Q&A session. Come with a question and be ready to learn from two of the best!
Read MoreLike all trips to the emergency room, this one was unexpected. But my husband was shocked and overwhelmed to hear he had stage 4 lung cancer. With tumors throughout his chest and in his brain, his prognosis seemed dismal. The oncologist assigned by the hospital did not ease our panic..
Read MoreWe interviewed member and fellow ALK patient, Vangie Lim, about her journey with lung cancer and her experience participating in a unique clinical trial that is currently only open in Australia. Vangie is also very active in advocacy and is the founder of The Evangeline Lim Lung Cancer Foundation, the first lung cancer nonprofit in Australia to be founded by a patient, aiming to promote lung cancer advocacy and research and to provide patient support.
Read MoreDr. Christine M Lovly, MD, PhD at Vanderbilt-Ingram Cancer Center, Nashville, TN
Her studies concentrate on: Lung Cancer, EGFR, ALK, kinase fusions, acquired resistance, targeted therapies, tyrosine kinase inhibitors (TKIs), genomics, EGFR mutation, Small Cell Lung Cancer, Liquid Biopsies, Structural Biology, Precision Medicine
Read MoreEDITOR’S NOTE: Starting with this newsletter, we are launching a new “Fundraiser Spotlight Series”, featuring some of our top fundraisers in recent years. The idea is for members to get to know our fellow ALK members better and to get inspiration and ideas for how we, too, can fundraise for research through ALK Positive, Inc.
Read MoreAn updated review of the most current targeted therapies in NSCLC (non-small cell lung cancer) by targetable mutation.
Read MoreHere is a terrific chart of the most common side effects of Lorlatinib - and how best to manage them. If you are already taking Lorlatinib or it's in your future, this is a chart you will want to keep on file and share with your oncologist and caregiver. We hope you find it useful.
Read MoreI have been in Boston for many years, residency and fellowship training in oncology in 2000 and I have always been interested in lung cancer. It was a very different field 20 years ago. It was clear that so little was known about the underlying biological reasons for lung cancer and therefore for the few therapy options at the time. It was mostly chemotherapy! It motivated me to begin to get into research. I began in the study of KRAS, a driver oncogene in lung cancer. KRAS we have known for many decades. EGFR was discovered in 2004.
Read MoreEditor’s Note: A special thanks to Marc Rosenzweig for creating and scheduling the ALKtALK programs. Alice Chou graciously committed her time to transcribe the January ALKtALK with Dr. Camidge so that it would be available here on our blog for other ALK patients.. Thank you so much Alice Chou for your hard work and generosity!! . . and a big thank you to Dr. Camidge for spending his Sunday evening with our group answering these questions.
Read MoreWith the rise of Covid-19 infection rates and the promise of a Covid-19 vaccine, we are going to delve into the questions of “what is a vaccine?” and “should we or should we not take it”?
Read MoreClinical trials play an important role in the long-term survival of many lung cancer patients. Below is a link to a compilation of resources that will help ALK-positive patients and their care teams identify suitable clinical trials that are open to them.
Read MoreWhat function does ALK serve in a healthy human? Read for some fascinating proposed hypotheses.
Read MoreWhat is Vitamin D and does it have a role in fighting lung cancer and the Covid-19 virus?
Read MoreWhat can ALKies do to stay active and improve their fitness? Read for advice for every fitness level.
Read MoreMany ALK Positive members know Hanka Mosher through her Zoom yoga classes on ALKtALK. Did you know that Hanka is also an avid skier and passionate about health and wellness in general?
Read MoreNew year, new exercise regimen to lose weight and feel better. That’s everyone’s New Year’s resolution. But you just can’t see that happening this year. You want to forget about it.
Who has the energy for exercise when you’re recovering from the holidays, getting the kids geared up for another stretch of online classes, and thinking about COVID-all while you’re in a fight of your life?
Read MoreJoin Marc Rosenzweig and ALK experts for ALKtALK on Sundays this month. On Jan 10th, Colin Barton will be asking Dr. Alice Shaw questions that come from you. And again on Sunday, Jan 24th they will host Dr. Christine Lovly.
Read MoreHolly jolly parties, eggnog, gingerbread cookies, joyous Christmas carols, and family celebrations. All signs of the holiday season. A time of giving, joy, and vitality. The happiest time of the year. But not for everyone.
Read MoreBehind the numbers lie the faces of lung cancer- and the faces are many. Lung cancer has, by far, the highest mortality rate among all cancers for both men and women.
November is Lung Cancer Awareness Month, so let’s look at it by the numbers and in doing so, the lives affected by this disease.
Read MoreResearch for the right treatments is behind every ALK-positive patient’s hopeful prognosis. While ALK-positive patients now live longer than ever before, we still need more. Our aim at ALK Positive is to improve the life expectancy and quality of life of every ALK-positive cancer patient worldwide and for this reason we are dedicated to funding rigorously-selected, cutting edge research. Fundraising is an essential factor driving this research and all members are encouraged to actively donate and/or fundraise towards our common goal. Read on to find out how two of our members organized their own fundraisers and what advice they have for those interested in fundraising for ALK Positive.
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