Tag: clinical trials
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True or False: Test Your Knowledge of Clinical Trials
Clinical trials are often misunderstood. This short quiz explores common myths and facts about trials, helping patients better understand participation, safety, and the role research plays in improving outcomes for ALK-positive cancers.
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Clinical Trial Connect
Clinical Trials Connect is a welcoming discussion group for ALK-positive patients interested in learning more about clinical trials and what participation may involve. Facilitated by ALK Positive board member and long-term patient Jeff Sturm, sessions offer education, trusted resources, and open conversation so participants can better understand trial opportunities, eligibility, and the experiences of others…
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The Colin Barton Spirit of Courage Award
At the 2025 ALK Summit in San Diego, ALK Positive proudly introduced the Colin Barton Spirit of Courage Award—a tribute to the vision, leadership, and tireless dedication of one of our founding members. From helping launch the organization and leading the Medical Committee, to personally funding research and inspiring millions in donations, Colin’s courage has…
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Patient Spotlight: Jake Legasse
At just 15 years old, Jake Lagasse was diagnosed with stage IV ALK-positive lung cancer. Thirteen years later, he continues to defy the odds—running marathons, working full-time, and embracing each day while participating in the Nuvalent 655 clinical trial. Jake credits his family, friends, and community for keeping him strong and reminds others facing ALK+…
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Patient Spotlight: Rick Meyer
We interviewed long term survivor Rick Meyer on his experience with multiple ALK TKIs, his participation in the Nuvalent clinical trial for almost two years and counting, and his overall attitude to life as a thriving ALK patient.