Tag: clinical trials
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Clinical Trial Connect
These sessions provide a space for open conversation about death – removing the stigma surrounding discussions of mortality.
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The Colin Barton Spirit of Courage Award
At the 2025 ALK Summit in San Diego, ALK Positive proudly introduced the Colin Barton Spirit of Courage Award—a tribute to the vision, leadership, and tireless dedication of one of our founding members. From helping launch the organization and leading the Medical Committee, to personally funding research and inspiring millions in donations, Colin’s courage has…
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Patient Spotlight: Jake Legasse
At just 15 years old, Jake Lagasse was diagnosed with stage IV ALK-positive lung cancer. Thirteen years later, he continues to defy the odds—running marathons, working full-time, and embracing each day while participating in the Nuvalent 655 clinical trial. Jake credits his family, friends, and community for keeping him strong and reminds others facing ALK+…
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Patient Spotlight: Rick Meyer
We interviewed long term survivor Rick Meyer on his experience with multiple ALK TKIs, his participation in the Nuvalent clinical trial for almost two years and counting, and his overall attitude to life as a thriving ALK patient.