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Tag: caregiver

  • Pediatric ALK-positive cancer patient

    Pediatric ALK Spotlight Interview with mother and caregiver Ashley Sitorius, Hampstead, North Carolina

    We interviewed , mother and caregiver of 11-year-old Deliah, who was diagnosed with ALK-positive brain cancer when she was just 7. ALK can actually appear in many pediatric cancers as […]

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  • A couple stand together in an autumn park while their kids run around.

    Dan and Brittany Wilson

    Both Dan (the ALK patient) and Brittany (the spouse-caregiver) are actively involved in ALK Positive. We interviewed them both in their home city of Philadelphia, Pennsylvania, about their background, their life with ALK, and about how their volunteer activity has enriched their lives.

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  • Interview with Dr. Ken Culver, ALK Positive, Inc. Director of Research & Clinical Affairs

    1. Tell us a little about your personal and professional background, and what inspired you to accept the position of Director of Research & Clinical Affairs for ALK Positive, Inc. […]

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  • Andrej Krivda, patient

    PATIENT SPOTLIGHT: Andrej Krivda, Wettingen, Switzerland

    We interviewed fellow ALKie Andrej Krivda on his very interesting journey with ALK+ lung cancer and all the unexpected twists and turns he’s had to navigate since diagnosis. Andrej is […]

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  • PATIENT SPOTLIGHT: Debbi Martinez, New Jersey, USA

    Member and fellow ALKie Debbi Martinez is the volunteer working behind the scenes with ALK Positive’s Kindful fundraising platform and doing a great job at that. For this year’s Lung […]

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  • Ruby Blow, Patient Advocate

    PATIENT SPOTLIGHT: Ruby Blow, Atlanta, GA, USA

    Please enjoy our interview with the wonderful and courageous Ruby Blow! 1) Share with us a little bit about yourself, including your personal life, your professional background, and your journey […]

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  • PATIENT SPOTLIGHT: Emily Venanzi, Newton, Massachussetts

    Emily Venanzi is an active member of our Medical Commitee (with particular involvement in the Research Review Panel selecting which research projects to fund) as well as our Research Accelaration […]

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  • Nancee Pronsati, Patient and Vice President of ALK Positive Inc.

    PATIENT SPOTLIGHT: Nancee Pronsati, Golden, Colorado, USA

    Nancee has been an ALK patient for the last 6 years, and she is an incredible member of the ALK community who is devoting her time and resources to multiple […]

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  • PATIENT SPOTLIGHT: Dr. Charelle Samuels, Pittsburg, Pennsylvania

    EDITORS NOTE: Sadly, Dr. Charelle Samuels  passed away on October 8, 2022.  Charelle was a valued volunteer for the ALK Positive Healing Arts program and hosted roundtable groups.  She brought […]

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  • Patient Spotlight: Colin Barton, Denver, Colorado

    Editor’s Note: We had a discussion with long-time member, Medical Committee Chair, Board member and donor, Colin Barton, about his background and personal history, his attitude to life, the achievements […]

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  • Honoring the memory of Linnea Olson: long-term ALK survivor, clinical trial pioneer, fierce lung cancer advocate, loving mother of three

    The ALK world and more broadly the lung cancer world lost one of its most precious and vocal voices on November 15, 2021, ironically during Lung Cancer Awareness Month and […]

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  • Honoring our Caregivers

    November is…National Family Caregivers Month The majority of those impacted by lung cancer are aware November is Lung Cancer Awareness Month, but in 2014 President Barack Obama created a proclamation […]

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