A researcher in a lab looking at a tablet.

Category: ALK Positive News

  • photo of Nancee Pronsati, the most amazing person that ever lived, speaking.

    Managing Lorlatinib Together: What Patients and Experts Want You to Know

    “Patients can—and should—have a voice in their care. This guide is about giving them the tools to do just that.” — Nancee Pronsati, ALK Positive Inc.

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  • ALK Positive Inc.'s Scientific Advisory Board.
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    ALK Positive Announces Formation of Distinguished Scientific Advisory Board

    ATLANTA, February 13, 2025 – ALK Positive Inc, a patient-driven organization that seeks a cure for ALK-positive cancer, today announced the establishment of a Scientific Advisory Board (SAB) comprised of renowned experts in ALK-positive cancer to guide the organization’s research initiatives and strategic direction. The formation of the SAB underscores ALK Positive’s commitment to funding the…

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  • Patty Saccenti (Italy) and Irfan Gilani (Denmark) at the European Lung Cancer Conference.

    MEET YOUR STAFF: Introducing Sadia Yaakov, Medical Project Manager at ALK Positive, Inc

    I was born and raised in Pennsylvania and had an interest in cancer research from the time that I was a child. I was exposed to Fox Chase Cancer Center very early on and knew from that moment that I wanted to do something to help in the fight against cancer. I attended University of…

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  • Palliative Care with various related illustrations.
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    Palliative Care for ALK-Positive Lung Cancer: Research Identifies a Vital Resource for Improving Quality of Life

    For individuals diagnosed with ALK-positive lung cancer, the mention of palliative care can often lead to confusion or misunderstanding. Many wonder: Why is palliative care recommended? How does it fit into my treatment plan? Do I need it now, or is it something to consider later? Let’s look at the research and explore how palliative…

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  • Katie Delaney.

    MEET YOUR STAFF: Introducing Katie Delaney, Philanthropy Operations Manager at ALK Positive, Inc.

    With over a decade of entrepreneurship and management experience, I’ve learned one enduring truth: obstacles become opportunities when met with hard work and dedication. Believing that anything is possible with perseverance and self-belief, I’ve discovered that the greatest gift is empowering others to believe in themselves as well.

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  • Terry McGowan, Ken Culver and Dr. Jesse Boehm.
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    Break Through Cancer and ALK Positive, Inc. Team Up to Conquer ALK-Positive Lung Cancer with a $2 Million, Multi-year, Research Partnership

    Break Through Cancer announces a new partnership with ALK Positive Inc. (ALK Positive), a foundation funded by patients with ALK-positive lung cancer and their families. ALK Positive and Break Through Cancer are joining forces to fund a new initiative in lung cancer research with the hope of creating durable responses and cures for patients with…

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  • ALK Positive Europe – Strengthening the voice of ALK-positive cancer patients in Europe

    ALK Positive Europe (APEU) was founded in 2022 and has its origin in a Facebook group of European patient advocates who were supported in the beginnings by Gina Hollenbeck. In Europe, there are several patient organizations and groups that advocate for ALK-positive patients limited to their own countries. The size of these associations and groups…

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  • ALK Positive and Lung Cancer Research Foundation: Expanding Our Research Partnership

    June 15, 2023 – ALK Positive and the Lung Cancer Research Foundation (LCRF) are pleased to announce a groundbreaking research partnership to fund $2 million in ALK-positive lung cancer research over the next three years.  As the leading patient-led organization in ALK-positive cancer, ALK Positive is excited to spearhead this innovative initiative and raise funds to…

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    Instructions and Call for Patient Participation in The University of Michigan Judith Tam ALK Lung Cancer Research Initiative

    The University of Michigan Judith Tam ALK Lung Cancer Research Initiative is recruiting ALK positive NSCLC patients for extensive and sustained studies of the course of each individual’s disease. Their research is enabled by the continuing donation of patients’ blood samples, tumor tissue samples, and/or malignant fluids, as each may be available over time for…

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    Call for Patient Participation in The University of Michigan Judith Tam ALK Lung Cancer Research Initiative

    The University of Michigan Judith Tam ALK Lung Cancer Research Initiative is recruiting ALK positive NSCLC patients for extensive and sustained studies of the course of each individual’s disease.  Their research is enabled by the continuing donation of patients’ blood samples, tumor tissue samples, and/or malignant fluid as each may be available over time for…

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  • Announcing the ALK International Development Alliance (IDA)

    As part of the ALK Positive mission statement the ALK Positive Inc Board of Directors is committed to assisting ALK patients worldwide. Whilst there are many international members in the independent ALK Facebook Support Group, we are also greatly encouraged by the numerous international patients and caregivers who have subscribed to our newsletter. Amongst other…

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    ALK Positive and LUNGevity Foundation Announce Recipients of the 2022 ALK-Positive Research Awards

    To transform advanced ALK-positive lung cancer into a chronic or curable disease, ALK Positive to award $1.75 million through their research award program WASHINGTON, DC (December 1, 2022)— Patient organization ALK Positive, in partnership with LUNGevity Foundation, announced the 2022 recipients of the ALK Positive/LUNGevity ALK-Positive Lung Cancer Research Awards. The grant monies, totaling $1.75…

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