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Tag: patient education

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    Side effects compliation & comparison

    IMPORTANT: This table is a list of various side effects members have shared.  Please remember, this is NOT a medical document.  Please use it as a guide and a starting point.  Please consult your medical team for specific advice!  Please open the PDF for the full compilation AUTHOR: Alice Chou

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  • Brain Metastasis Radiation Options

    Radiation Options to Treat Brain Metastasis: Quick Review of WBR, SRS, and SFRT Nieder et. al. wrote an easy to understand paper on the management of patients with brain metastases from non-small cell lung cancer and adverse prognostic features: multi-national radiation treatment recommendations are heterogeneous. The authors used data from 17 real patients to request recommendations…

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  • Juggling a young family while dealing with a cancer diagnosis

    When someone receives a cancer diagnosis, the entire family is affected.  In this quick review, we highlight several aspects of juggling a family while dealing with a cancer diagnosis.   What and how should we tell the kids?  How much should they be involved? Honesty is the best way to deal with a cancer diagnosis. …

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  • Announcing $5,000 Scholarships for Children of Parents with Rare Lung Cancer

    $5000 SCHOLARSHIPS FOR CHILDREN OF PARENTS WITH RARE LUNG CANCER College scholarship enabled by the family of Regina Dieker Kay & ALK Positive   Washington DC, March 15th, 2020 – The Dieker Kay family, in collaboration with ALK Positive, is pleased to announce the new ALK Positive Lung Cancer Scholarship, an Award Honoring the Memory…

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  • Case Study: successful re-use of Brigatinib after Lorlatinib

    Case study: Successful re-use of Brigatinib after Lorlatinib The patient in this case study was diagnosed with ALK-positive lung cancer in 2005 and had disease progression on several occasions.  Chemotherapy and radiation were used to treat the first two local progressions to the brain and spinal cord.  In 2012, the patient was prescribed Crizotinib for…

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    Biomarker Testing, explained

    Ever wondered what biomarker testing really refers to and what it means for your treatment options? Read on for a simplified explanation of how biomarkers can drive cancer, how testing is done, and how they can affect treatment decisions. Bonus section: an unusual case study where a patient achieved partial remission by re-using Brigatinib after…

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  • What exactly is ALK-positive lung cancer?

    Find out more about the history of ALK fusion with an emphasis on early discovery, diagnostic methods, and the development of the first targeted ALK inhibitors. ALK Lung Cancer 101 These links provide a good general explanation of what ALK-positive lung cancer means for a newly-diagnosed patient. https://lcfamerica.org/lung-cancer-info/types-lung-cancer/alk-positive-lung-cancer https://www.webmd.com/lung-cancer/faq-stage-four-lung-cancer-with-alk#1   How did it all start?…

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  • MET and TP 53: How they relate to ALK lung cancer

    MET Amplification MET is a receptor tyrosine kinase that participates in the hepatocyte growth factor (HGF)-mediated signaling pathway.  This protein is anchored to the cell wall to pass information from the outside the cell to the inside of the cell.  Normally, the receptor is activated by binding to HGF.  This binding leads to phosphorylation (adding…

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  • Free Second Opinion Program gives patients worldwide expert access

    ALK POSITIVE SECOND OPINION PROGRAM Designed to Improve Patient Outcomes and Reduce Anxiety This unique program was conceived by our generous ALK Positive member, Jim Peard. Jim was deeply concerned that some ALK Positive members did not have access to a quality care team to guide treatment. The Medical and Pharmaceutical Advocacy Committee of ALK…

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  • What’s Trending? Posts you don’t want to miss (July 2019)

    On any given day, we have dozens of posts on our ALK Positive Facebook Group. It’s likely that someone has posted content or questions on a topic that you’re interested in. This column will help you catch up on some of posts you might have missed.  Just click the titles below for more.  Read the…

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  • July 2019 Lung Cancer Research Updates

    We are in a golden age of lung cancer research, but it can be hard to keep up with all the findings.  Our ALK Positive newsletter volunteers have put together this list of some of the recent research being done on lung cancer, with a focus on ALK-positive lung cancer. Topic:  Effectiveness of Lorlatinib and…

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  • Expanding Our Reach

    ALK Positive held their first-ever ALK Positive Fun Summit in Louisville, Kentucky on July 27th and 28th. It was an amazing meeting of patients and caregivers! To see highlights from the Summit, please visit our Outreach page at https://www.facebook.com/alklungcancer. ALK Positive now has an Instagram account to leverage our presence, advocacy, and connectivity to the…

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