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ALK+ Blog/News

  • Patient Spotlight: Bill Schuette

    Can you share a little about your journey with lung cancer?    In 2007, at age 59, I found myself sitting in a hospital cubicle at Cleveland Clinic with my wife and three adult children who had traveled from across the country to support me. The doctor’s words: “Bill, you have adenocarcinoma non-small cell lung…

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  • New collaborative partnership with Biden Cancer Initiative

    ALK Positive is excited to join the Biden Cancer Initiative through our partnership with the new Oncogene Collaborative Initiative (OCI), a Biden project, in which patient driven advocacy groups from various oncogenes will collaborate to improve biomarker testing and treatment for cancer patients. Below is the Biden press release for tomorrow’s Cancer Summit in Washington,…

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  • Lessons Learned

    Cancer can rock your world at any age, especially if the one diagnosed is a spouse or close family member. While new targeted therapies have brought the hope of a good quality of life for a longer period of time with terminal cancer, the disease can take its toll on everyone involved. This article highlights…

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  • 2019 ALK Positive Summit- Atlanta, GA

    WE ARE NOT YOUR NORMAL STAGE 4 LUNG CANCER PATIENTS 200 ALK Positive Lung Cancer Patients Visit Atlanta On August 2nd, 2019 over 200 lung cancer survivors and advocates will be traveling to Atlanta for the 2nd Annual ALK Summit to be held at the Omni Atlanta Hotel at CNN Center.  The ALK Positive Summit…

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  • How to support a loved one diagnosed with cancer

    Few things in life are as devastating as a cancer diagnosis and many who are subjected to such a difficult experience go through a range of emotions as the things they could once do are slowly stripped away. Those responsible for caring for someone undergoing cancer treatment or palliative care for a terminal diagnosis need…

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  • Free Second Opinion Program gives patients worldwide expert access

    ALK POSITIVE SECOND OPINION PROGRAM Designed to Improve Patient Outcomes and Reduce Anxiety This unique program was conceived by our generous ALK Positive member, Jim Peard. Jim was deeply concerned that some ALK Positive members did not have access to a quality care team to guide treatment. The Medical and Pharmaceutical Advocacy Committee of ALK…

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  • What’s Trending? Posts you don’t want to miss (July 2019)

    On any given day, we have dozens of posts on our ALK Positive Facebook Group. It’s likely that someone has posted content or questions on a topic that you’re interested in. This column will help you catch up on some of posts you might have missed.  Just click the titles below for more.  Read the…

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  • Patient Spotlight: Jodi Garst Parker

    EDITORS NOTE: Sadly, Jodi Garst Parker passed away on May 8, 2021. She was a wife, mother, stepmother and grandmother.  Jodi was a nurse, and she used that knowledge to help others in our ALK + community    Can you tell us a few things about yourself? I’m Jodi Garst Parker, from Idaho Falls, Idaho. I’ve…

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  • July 2019 Lung Cancer Research Updates

    We are in a golden age of lung cancer research, but it can be hard to keep up with all the findings.  Our ALK Positive newsletter volunteers have put together this list of some of the recent research being done on lung cancer, with a focus on ALK-positive lung cancer. Topic:  Effectiveness of Lorlatinib and…

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  • ALK Positive Inc. partners with GO2 Foundation for groundbreaking ALK Research

    We are excited to partner with the new GO2 Organization. With this new powerhouse partner, we will fund more research, lower our overhead costs, and provide more treatment for this disease. We will launch a new fundraising portal this month. More details are soon to come with full research proposal announcements. FAQ’s   How will the…

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  • Patient and Care Partner Spotlight: Living with hope

    Living with hope means different things to different people. Hope can come from any source and can take any form. Improved longevity and quality of life always seem to take center stage as sources of hope among our members, but so does spending precious time with family and loved ones. And then, there’s finding hope…

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  • “Whatever you do, don’t Google it”

    “Through sickness and in health” By Kevin & Meredith Minor (Click to Follow Their Cancer Journey Blog) Kevin and I got married February 16, 2019 in a beautiful Southern wedding. We couldn’t have asked for a more perfect day and it was easily the best day of my life. We had an amazing honeymoon in…

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