A researcher in a lab looking at a tablet.

ALK+ Blog/News

  • So what about immunotherapy?

    The hot phrase in cancer treatment is immunotherapy right now. What does it mean for ALK+patients?  Sometimes, you hear that immunotherapy does not work? But why are we trying to fund and are funding vaccines? Don’t vaccines work with the immune system? This short summary is to clarify these questions for you. There is an…

    Read More

  • The Caregiver Journey

    The Center for Disease Control (CDC) defines the caregiver as providing care to people who need some degree of ongoing assistance with everyday tasks on a daily basis. It is not surprising the CDC clarifies caregiving is a public health priority; noting the health of caregivers is at risk. Over the years, in conversation with…

    Read More

  • ,

    Dr. Vincent Lam at ALKtALK

    Director, Esophageal Cancer Research Program, Assistant Professor of Oncology Expertise: Esophageal Cancer & Lung cancer  Dr Lam: I am so excited to join your conversation tonight on a Sunday evening.  I’m scrolling through five pages of people on the zoom call.  It’s just amazing to see how committed and engaged you all are.  That’s a…

    Read More

  • Patient Spotlight: Jamie Gibbard, Kent, United Kingdom

    Meet Jamie, one of our international group members and an active volunteer for ALK Positive. Jamie was interviewed about his journey with lung cancer, sharing how volunteering for a purpose that can improve outcomes for our members worldwide has helped him see his diagnosis in a different light. 1) Tell us a little about your…

    Read More

  • Stronger Together: ALK+ (Virtual) Summit 2021 July 31 & Aug 1

    TWO AMAZING DAYS of Knowledge, Hope, Sharing & Connection REGISTRATION IS FREE! DAY 1_SATURDAY AGENDA: (All times Eastern Standard)10:00am-11:00am (EST) Welcome! We are kicking off our ALK Summit 2021 with our ALK Summit Chair Amanda Nerstad, President Gina Hollenbeck and our keynote speaker, Teresa Graham, Head of Global Product Strategy with Roche Pharmaceuticals 11:15am-12:45am The…

    Read More

  • ,

    Dr. Benjamin Levy & NPC Rasheda Persinger join ALKtALK

    BENJAMIN PHILLIP LEVY, MD, Clinical Director of Medical Oncology Johns Hopkins Sidney Kimmel Cancer Center at Sibley Memorial Hospital Associate Professor of Oncology RASHEDA PERSINGER, Nurse Practitioner Johns Hopkins Sidney Kimmel Cancer Center at Sibley Memorial Hospital Deborah Kimmel, a patient since January 2018, gave an introduction. “Dr. Levy is one of the leading Thoracic…

    Read More

  • The cover to Translational Lung Cancer Research.

    ALK Genetics 101

    About two years ago (before Dr. Ken Culver was hired as ALK Positive Inc Director of Research and Clinical Affairs, and Colin Barton was still leading the ALK Positive Inc Medical Committee), Colin received an email from Dr. Justin Gainor and Dr. Jessica Lin from Massachusetts General Hospital, inviting ALK Positive Inc to contribute to…

    Read More

  • Hope for ALK+ NSCLC Patients

    It’s important that we generate our own hope throughout the challenges and difficulties of ALK+ NSCLC.  Oh yes, there is plenty to be hopeful about on the research and treatment fronts. The news about next-generation TKIs, chemotherapy, vaccines, a variety of promising trials; all give credence to the case for much longer survival than ever. …

    Read More

  • A scientist in a lab looking through a microscope and writing on a clipboard.

    Update on Clinical Trials currently recruiting for ALK-positive lung cancer

    A new ALK inhibitor starts its clinical trials this month! TPX-0131 is an TKI ALK inhibitor designed to overcome multiple ALK resistance mutations. This first-in-human trial for ALK-positive lung cancer is now recruiting near Perth, Australia. Other sites for the FORGE-1 trial will be added in Australia and the U.S. over the next few months.…

    Read More

  • Real World Data in Medical Research

    What is real world data vs. on-paper data?  Scientists create experiments in laboratories and present the best data they can in published papers for everyone to share.  That’s paper data.  In real life, clinical doctors prescribe the medication and the end results for people are the real-world data.  Most of the time, this section highlights…

    Read More

  • Patient Spotlight: Milestones after a stage IV diagnosis

    Featured: In this newsletter, we are celebrating milestones. A cancer diagnosis (even at stage IV), while devastating, can often open up new doors and lead patients to a new calling in life. We interviewed Shyreece who has written and published two books; Juanita who has become a foster parent together with her husband; and Cori…

    Read More

  • ,

    Dr. Justin Gainor & Dr. Aaron Hata join ALKtALK

    Dr. Justin Gainor, MD Director of Center for Thoracic Cancers & Director of Targeted Immunotherapy at Massachusetts General Hospital, Boston Assistant Professor of Medicine at Harvard Medical School “It’s great to be here tonight. It’s so nice to see so many familiar faces on the call. Being one of the recipients for the ALK Positive…

    Read More