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ALK+ Blog/News

  • Dr. Alice Shaw
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    An Interview with Dr. Alice Shaw at ALKtALK, Feb. 2022

    Dr. Alice Shaw, MD, PhD, Boston, MA Global Head of Translational Clinical Oncology at Novartis Attending physician, Center for Thoracic Cancers at Massachussets General Hospital Associate Professor of medicine at Harvard Medical School Transcript of ALKtALK, February 6, 2022 Introduction I am from Maryland originally. Then, after high school, I came up here to Boston,…

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    LUNGevity Partners with ALK Positive to Award $1.5 Million in Lung Cancer Research Grants

    FOR IMMEDIATE RELEASEMedia ContactColin Bartonmedical@alkpositive.org303-204-3388 WASHINGTON, DC (January 27, 2022) — LUNGevity Foundation is partnering for the third time with the patient-led registered nonprofit organization ALK Positive to support the ALK-Positive Lung Cancer Research Award Program. This year, the patient oncogene group will potentially fund research projects totaling up to $1.5 million over two years—their…

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    ALK-positive Best Care 101

    ALK-positive best care 101

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    $7.6M Gift Launches New Lung Cancer Research Initiative at University of Michigan’s Rogel Cancer Center

    EDITOR’S NOTE: This is a reprint of a press release from the University of Michigan’s Rogel Cancer Center – this $7.6 million gift from Judith L. Tam and the Richard Tam Foundation may be the largest made to-date specifically for ALK-positive research. The direct link to the release is here: Increased understanding of the genetic…

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  • Stronger Together: The Latest from ALK Positive Inc.

    ALK Positive, Inc. became a registered 501c3 (nonprofit) organization in March 2021. Both the ALK Positive Board of Directors and the ALK Positive Committees are comprised of volunteer members from the ALK Positive Support Group, all ALK-positive patients or caregivers themselves. The Board and Committees are all working together to improve the life expectancy and…

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    Understanding ALK structural data

    “Know thy self, know thy enemy. A thousand battles, a thousand victories”; a quote by the famous Chinese historical figure Sun Tzu. Accordingly, scientists have been working hard at understanding the fundamentals of the ALK protein. Recently, a paper was published by a group of scientists in Belgium lead by Dr. Savvides, in which they described…

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  • A scientist in a lab looking through a microscope and writing on a clipboard.

    Clinical Trials Can Help Those with ALK Lung Cancer Get State of the Art Treatment

    In this newsletter, we pay tribute to Linnea Olson, a 17-year ALK-positive lung cancer survivor. We lost her in November of 2021, but her legacy as a creative, kind, and impactful lung cancer advocate will always inspire our group. Linnea, along with many other long-term ALK-positive lung cancer survivors, participated in clinical trials at several…

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  • Patient Spotlight: Colin Barton, Denver, Colorado

    Editor’s Note: We had a discussion with long-time member, Medical Committee Chair, Board member and donor, Colin Barton, about his background and personal history, his attitude to life, the achievements of the Medical Committee which he has been chair continuously since 2017, and his hopes and excitement for the future of ALK-positive cancer treatments. 1)…

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  • Honoring the memory of Linnea Olson: long-term ALK survivor, clinical trial pioneer, fierce lung cancer advocate, loving mother of three

    The ALK world and more broadly the lung cancer world lost one of its most precious and vocal voices on November 15, 2021, ironically during Lung Cancer Awareness Month and only days before her 62nd birthday. Linnea Olson set a paradigm in the treatment of lung cancer and left a void that is hard to…

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  • Honoring our Caregivers

    November is…National Family Caregivers Month The majority of those impacted by lung cancer are aware November is Lung Cancer Awareness Month, but in 2014 President Barack Obama created a proclamation to recognize National Family Caregivers Month in the month of November too. Statistically speaking, it is estimated that 4.6 million people in the US alone…

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  • ALK Positive Micro-Documentary “Stronger Together” Available on Youtube

    You can share this powerful micro-documentary featuring four women living with ALK-positive lung cancer, as well as leading lung cancer researchers, Dr. Christine Lovly and Dr. Vincent Lam. The documentary resides on the ALK Positive YouTube page here And here are two other Video clips that did not make the final video but have a…

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    Sequencing treatment in ALK-positive cancer

    The proverbial question, “what is my best treatment option?” is always on a patient’s mind. With the current treatment options available to us, ALKies, “what should we do?” comes up often.  There are all the TKI options (Crizotinib, Ceritinib, Ensartinib, Alectinib, Brigatinib, and Lorlatinib), chemotherapy, radiation therapy and surgery (depending on your stage).   By…

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