A researcher in a lab looking at a tablet.

ALK+ Blog/News

  • Stronger Together: The Latest from ALK Positive Inc.

    ALK Positive, Inc. became a registered 501c3 (nonprofit) organization in March 2021. Both the ALK Positive Board of Directors and the ALK Positive Committees are comprised of volunteer members from the ALK Positive Support Group, all ALK-positive patients or caregivers themselves. The Board and Committees are all working together to improve the life expectancy and…

    Read More

  • ,

    Understanding ALK structural data

    “Know thy self, know thy enemy. A thousand battles, a thousand victories”; a quote by the famous Chinese historical figure Sun Tzu. Accordingly, scientists have been working hard at understanding the fundamentals of the ALK protein. Recently, a paper was published by a group of scientists in Belgium lead by Dr. Savvides, in which they described…

    Read More

  • A scientist in a lab looking through a microscope and writing on a clipboard.

    Clinical Trials Can Help Those with ALK Lung Cancer Get State of the Art Treatment

    In this newsletter, we pay tribute to Linnea Olson, a 17-year ALK-positive lung cancer survivor. We lost her in November of 2021, but her legacy as a creative, kind, and impactful lung cancer advocate will always inspire our group. Linnea, along with many other long-term ALK-positive lung cancer survivors, participated in clinical trials at several…

    Read More

  • Patient Spotlight: Colin Barton, Denver, Colorado

    Editor’s Note: We had a discussion with long-time member, Medical Committee Chair, Board member and donor, Colin Barton, about his background and personal history, his attitude to life, the achievements of the Medical Committee which he has been chair continuously since 2017, and his hopes and excitement for the future of ALK-positive cancer treatments. 1)…

    Read More

  • Honoring the memory of Linnea Olson: long-term ALK survivor, clinical trial pioneer, fierce lung cancer advocate, loving mother of three

    The ALK world and more broadly the lung cancer world lost one of its most precious and vocal voices on November 15, 2021, ironically during Lung Cancer Awareness Month and only days before her 62nd birthday. Linnea Olson set a paradigm in the treatment of lung cancer and left a void that is hard to…

    Read More

  • Honoring our Caregivers

    November is…National Family Caregivers Month The majority of those impacted by lung cancer are aware November is Lung Cancer Awareness Month, but in 2014 President Barack Obama created a proclamation to recognize National Family Caregivers Month in the month of November too. Statistically speaking, it is estimated that 4.6 million people in the US alone…

    Read More

  • ALK Positive Micro-Documentary “Stronger Together” Available on Youtube

    You can share this powerful micro-documentary featuring four women living with ALK-positive lung cancer, as well as leading lung cancer researchers, Dr. Christine Lovly and Dr. Vincent Lam. The documentary resides on the ALK Positive YouTube page here And here are two other Video clips that did not make the final video but have a…

    Read More

  • ,

    Sequencing treatment in ALK-positive cancer

    The proverbial question, “what is my best treatment option?” is always on a patient’s mind. With the current treatment options available to us, ALKies, “what should we do?” comes up often.  There are all the TKI options (Crizotinib, Ceritinib, Ensartinib, Alectinib, Brigatinib, and Lorlatinib), chemotherapy, radiation therapy and surgery (depending on your stage).   By…

    Read More

  • A scientist in a lab looking through a microscope and writing on a clipboard.

    Announcing ALK Positive ClinWiki, A Better Way to Search for Clinical Trials

    The main register of worldwide clinical trials is ClinicalTrials.gov, which has a search function. But searching for “ALK lung cancer” on ClinicalTrials.gov is a frustrating exercise. Oddly, you will be directed to many studies that exclude ALK lung cancer. The ALK lung cancer trials in ClinicalTrials.gov are not sorted by line of treatment, so it…

    Read More

  • The latest from ALK Positive Inc.

    ALK Positive, Inc. became a registered 501c3 (nonprofit) organization in March 2021. Both the ALK Positive Board of Directors and the ALK Positive Committees are comprised of volunteer members from the ALK Positive Support Group, all ALK-positive patients or caregivers themselves. The Board and Committees are all working together to improve the life expectancy and…

    Read More

  • Patient Spotlight: Yuhui Hurng, Signapore

    EDITORS NOTE: Sadly, Yuhui Hurng passed away. She was the mother of two young children. She was an active and eloquent contributor to our Support Group Community. She is remembered for her authentic and open posts that helped many.   We interviewed our member Yuhui Hurng about her journey with ALK-positive lung cancer, her experience with…

    Read More

  • Honoring our Volunteers

    Our volunteers are our driving force. We could not have been where we are without them. The least we can do is honor and thank them for their contribution to the ALK Positive Support Group and ALK Positive, Inc. (our registered 501c3 nonprofit). Below is a list of all the people who are currently generously…

    Read More