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Understanding ALK structural data
“Know thy self, know thy enemy. A thousand battles, a thousand victories”; a quote by the famous Chinese historical figure Sun Tzu. Accordingly, scientists have been working hard at understanding the fundamentals of the ALK protein. Recently, a paper was published by a group of scientists in Belgium lead by Dr. Savvides, in which they described…
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Sequencing treatment in ALK-positive cancer
The proverbial question, “what is my best treatment option?” is always on a patient’s mind. With the current treatment options available to us, ALKies, “what should we do?” comes up often. There are all the TKI options (Crizotinib, Ceritinib, Ensartinib, Alectinib, Brigatinib, and Lorlatinib), chemotherapy, radiation therapy and surgery (depending on your stage). By…
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The latest from ALK Positive Inc.
ALK Positive, Inc. became a registered 501c3 (nonprofit) organization in March 2021. Both the ALK Positive Board of Directors and the ALK Positive Committees are comprised of volunteer members from the ALK Positive Support Group, all ALK-positive patients or caregivers themselves. The Board and Committees are all working together to improve the life expectancy and…
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Fundraising Guide and Tips for Lung Cancer Awareness Month
About Lung Cancer Awareness MonthNovember is Lung Cancer Awareness Month (LCAM) — an excellent time of year to raise awareness and funds for research. LCAM is ALK Positive’s largest fundraising campaign of the year. We’ve set a goal to raise $1,000,000 in 2021. A huge thank you to the generous match donors who have pledged…
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International Ambassadors Survey- ALK Life Study
An informal survey was conducted with our ALK International Ambassadors, volunteers from various countries who are passionate about sharing their experiences with others. A total of 22 countries were represented in this survey. In addition to the US, European nations were well represented, as were Australia and New Zealand. There was a notable lack of…
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Stronger Together: ALK+ (Virtual) Summit 2021 July 31 & Aug 1
TWO AMAZING DAYS of Knowledge, Hope, Sharing & Connection REGISTRATION IS FREE! DAY 1_SATURDAY AGENDA: (All times Eastern Standard)10:00am-11:00am (EST) Welcome! We are kicking off our ALK Summit 2021 with our ALK Summit Chair Amanda Nerstad, President Gina Hollenbeck and our keynote speaker, Teresa Graham, Head of Global Product Strategy with Roche Pharmaceuticals 11:15am-12:45am The…
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FAQ @ ALK Positive Inc
FAQ about ALK Positive Research What is ALK-positive lung cancer? “ALK-positive” is a type of lung cancer involving a mutation of one type of gene, Anaplastic Lymphoma Kinase. All lung cancers are extremely serious, and more people die of lung cancer than the next three types (colon, breast, and prostate cancer) combined. However, ALK-positive…
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Lung Cancer Awareness Month: lung cancer by the numbers
“Because in our pain we must find each other – mirror to mirror the grace of our shared humanity, the stunningly broken beauty of our shared grief.And you can let your grief see my grief and let our tears mingle into some kind of healing alchemy, and you’ll know what I know.That we are never…
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ALK Positive funds two new clinical trials
November is Lung Cancer Awareness Month, which is a good time to reflect on our successes as an organization. In 2020, we were excited to announce that the ALK Positive/LUNGevity Research Fund will be funding clinical trials for the first time. It means that the money we have donated and raised is going directly toward…
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Lung Cancer Research Awards funded by ALK Positive Inc. in partnership with LUNGevity Foundation
ALK-positive lung cancer patients continue to fund research relevant to their survival FOR IMMEDIATE RELEASE WASHINGTON, DC (Date, 2020) — Patient group ALK Positive and LUNGevity Foundation today announced the three 2020 recipients of the ALK-positive Lung Cancer Research Awards. This award, driven by ALK Positive–a group that has grown to 2,000+ ALK-positive lung cancer…
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Announcing $5,000 Scholarships for Children of Parents with Rare Lung Cancer
$5000 SCHOLARSHIPS FOR CHILDREN OF PARENTS WITH RARE LUNG CANCER College scholarship enabled by the family of Regina Dieker Kay & ALK Positive Washington DC, March 15th, 2020 – The Dieker Kay family, in collaboration with ALK Positive, is pleased to announce the new ALK Positive Lung Cancer Scholarship, an Award Honoring the Memory…
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$500,000 Research grant to combat cancer treatment resistance
SAN CARLOS, Calif. and WASHINGTON, Feb. 6, 2020 /PRNewswire/ — ALK Positive (a patient-led group of 1,900+ lung cancer patients and caregivers in 50+ countries) and GO2 Foundation for Lung Cancer (a global lung cancer advocacy and education organization) are awarding a two-year, $500,000 Research Collaboration Grant to two renowned lung cancer researchers dedicated to overcoming treatment resistance. This grant funds research to help break down…
