Protect Funding for Lung Cancer and ALK-positive Cancer Research

ATLANTA, February 20, 2025 – The ALK Positive organization stands with patients, families, healthcare providers, researchers, and the broader medical community in our mission to increase survival for those at risk, diagnosed, and living with ALK-positive cancer.

We are deeply concerned with the devastating impact that severely and suddenly reducing the budget of the National Institute of Health (NIH) will have on medical research across our country. The termination of employees at the Food and Drug Administration (FDA) and the NIH, as well as limiting indirect costs for scientific grants, will impede critical scientific advances that ALL cancer patients need – ultimately endangering public health.

GovernmentKirk SmithFebruary 22, 2025advocacy, Research

Introducing ALKpositiv Deutschland (Germany) An interview with Sabine Hatzfeld & Nicoline Ehrhardt

In recent years, the German patient network, ALKpositiv Deutschland, has become an important point of contact for patients with ALK-positive lung cancer in German-speaking countries. Our story began in 2019 with a Facebook group that served as a platform for those affected to exchange information. From the outset, this group was an important place to find out online about diagnoses, therapies, side effects and current research updates, and to provide mutual support.

ALK InternationalKirk SmithNovember 5, 2024ALKpositiv Deutschland, advocacy

Introducing ALK Positive Denmark An interview with President, Irfan Gilani

Can you share with our readers the founding story of ALK Positive Denmark? What inspired the establishment of the organization? ALK Positive Denmark, founded on October 6, 2022, stands as a dedicated advocacy group for ALK-positive lung cancer patients and their families. The genesis of this initiative can be traced back to Heidi Vaarbjerg, who recognized the need for a support network for Danish patients facing ALK-positive lung cancer.

ALK InternationalKirk SmithMarch 24, 2024advocacy, International, Patient Spotlight

Patient Spotlight: Dr. Sydney Barned, Maryland, USA

We interviewed Dr. Sydney Barned - a medical doctor, ALK patient, and very active lung cancer advocate. We learned about her personal journey with ALK+ lung cancer, how lung cancer has also affected other members of her family, and, more importantly, her tireless involvement in lung cancer advocacy, some of which has already resulted in legislation being passed to help lung cancer patients

Patient StoriesKirk SmithJanuary 28, 2024advocacy, Patient Spotlight, Dr. Sydney Barned