Honoring our Volunteers

Our volunteers are our driving force. We could not have been where we are without them. The least we can do is honor and thank them for their contribution to the ALK Positive Support Group and ALK Positive, Inc. (our registered 501c3 nonprofit). Below is a list of all the people who are currently generously donating their time and talent to help take our various projects and initiatives forward. We are grateful to each and every one of you!

*Finance Committee: Clark Evans (Chair), Bill Westlake, Colin Barton, Phil Trahan, Jim Peard, Julie Silberger, Nancee Pronsati, Ken Schlosser, Tory Tourville, Debbi Martinez, Cathy Weaver, Deborah Friedman

*Communications Committee (including the website, newsletter, email communications, and social media): Kirk Smith (Chair), Erika Hlavacek, Christina Weber, Alice Chou, Ellee Urban, Christina Hershey, Rhonda Meckstroth, Jeff Sturm, Bill Westlake

*Medical Committee (including the following sub-Committees and programs: Research Review Panel, Research Acceleration Committee, Clinical Trials Committee, Survey Committee, ALK Research, Second Opinion Program): Colin Barton (Chair), Bill Westlake, Jenny Blender, Alexandra Golledge, Emily Venanzi, Julie Silberger, Morhaf Al Achkar, Ellee Urban, John Ashton, Janice Weitz, Patty Saccenti, Ray Hall, Eitan Kaplan, Stephanie Kratochwill, Jim Peard, Ricardo Salgado, JT Hedges, Patrick Venanzi, Kirk Smith, Christina Weber, Jan Nina, Stian Andre Aagnes, Alice Chou, Naor Masasa, Jeff Sturm, Linnea Olson, Gina Hollenbeck, Jari Faketty, Jean-Yves Gerardy, Debbi Martinez, Kelly Culliver, Nicolas Le-Bel, Lara Pato

*Advocacy Committee (including International Ambassadors Group): Clark Evans (co-Chair), Erika Hlavacek (co-Chair), Chel Gorombol, Gina Hollnbeck, Sydney Denrab-Nodrog, Bethany Barratt, Lia Ridout, Amanda Nerstad, Ryan Cerri, Michelle Hills, Aidi Yocum, Brett Newman, Kelly Vigon, Linnea Olson, Jamie Gibbard, Patty Saccenti & 196 International Ambassadors from 43 countries

*Board Governance Committee: Kirk Smith (Chair), Amanda Nerstad, Gina Hollenbeck

*Fundraising Committee: Misha Garrison (Chair), Colin Barton, Maureen Boutin, Christina Hershey, Gina Hollenbeck, Kara Lynch, Victoria Ni, Stephanie Peace, Terri Wilcox, Nancee Pronsati, Christina Weber

*Legal Committee: Teresa Wiant (Chair), Suzanne Remington-Fox, Rodney Tullett, Desiree Long

*Summit Planning Committee: Nancee Pronsati (Chair), Amanda Nerstad, Kirk Smith, Chel Gorombol, Gina Hollenbeck, Summer Farmen, Brittany Ann Wilson, Erika Hlavacek (swag bag coordination)

*Volunteer Coordinators: Nancee Pronsati, Kristina Stolte

*ALKtALK Program: Marc Rosenzweig (Program Leader), Gina Hollenbeck, Summer Farmen, Dana Querido, Linda Webb, Sarah O’ Connor, Dana Dell (Guided Imagery), Madeleine Pazzi (Art Therapy), Katherine Schaefer (Chair Yoga), Hanka Mosher (Yoga), Jessica Little (Death Café), Dr. Charelle Samuels (ALK Roundtable), Dan Wilson (ALK Men’s Group)

*E-shop merchandise design: Erika Hlavacek

*ALK Mail Brigade Program: Cori Casebeer (Coordinator), Misha Bess Garrison, Chaney Keefer, Lisa Schroedel Pryzbyla, Anne Marie JetLag, Laura Levaas, Deborah Picciotto-Hendriksen, Kathy Beaman, Michele Habjan Running, John Pender, Shelly Engfer-Triebenbach, Colleen Coller Ziegler, Marc Rosenzweig, Gina Hollenbeck, Lori Marlowe, Michelle Handler, Sotf Linda Webb, Carly Wimberley, Nancee Pronsati, Renee Westlake, Summer Hall Farmen, Jennifer Frazier, Judith Hack, Joyce Chohany, Diane Taglioli Hura, Karyn Robson, Ellen Hoverkamp, Jamie Gibbard, Jessica Darenkamp, Dana Querido, Ellen Karabell Rugel, Danielle Bailey VanderKooy, Lisa Tunney Scibilia, Renu S Bhalla, Sam McBride, Jennifer Taylor Carlson, Claire Goldstein, Jone Taylor, Paul Kennedy Sr., Tammie Middleton, Monica Ehlers, Suzanne Lambert, Annette Spalt, Beth Jansen, Julie Bishop Rees, Peggy Powell Berens, Maureen Domorski Markham, Kristi Flann, Kristina Ruff Stolte, Lisa Jane, Dolly Pal, Beth Barkway Vallad, Ellee Urban, Stig Harper, Debby Mills, Sarah Cordell, Jennifer Allen, Donna Kinnaird Shields, Susan Miller Hall, Stephanie Benjamin, Heather Tyndale, Kathleen Trask Johnson, Barbara LaMonaca, Sarah O‘Connor

*ALK Positive Support Group Administrators: Rhonda Meckstroth (Chief Administrator), Jari Faketty, Christine Tsai, Nadine Dragicevich, Jordan Garst (Moderator)

*Board of Directors, ALK Positive, Inc: Bill Westlake (President), Amanda Nerstad (Vice President), Christina Weber (Secretary), Clark Evans (Treasurer), Colin Barton, Gina Hollenbeck, Erika Hlavacek, Kirk Smith, Bethany Barratt, Karla Castro-Frenzel, JT Hedges, Nancee Pronsati, Jamie Gibbard, Patty Saccenti, Teresa Wiant

*Chairman Emeritus, ALK Positive, Inc: Tom Carroll

*We have made every effort to make this list as exhaustive as possible, but some people may have been left out unintentionally. Once more, we would like to express our gratitude and appreciation to each and every one of our volunteers, present and past, for generously donating your time and talents to help further our mission. Each one of you is making a BIG difference, proving that we are stronger together! We would also like to thank each and every one of you doing advocacy independently as well as everyone who has generously donated to and/or fundraised for ALK Positive, Inc. Everything counts and everything adds up!

We are always in need of volunteers. If you would like to contribute your time and skills to help further our mission to improve the life expectancy and quality of life of ALK-positive cancer patients worldwide, please contact our Volunteer Coordinator, Nancee Pronsati, at nancee.pronsati@alkpositive.org for a discussion and next steps.