What’s Trending? Posts You Don’t Want to Miss (July 2019)
On any given day, we have dozens of posts on our ALK Positive Facebook Group. It’s likely that someone has posted content or questions on a topic that you’re interested in. This column will help you catch up on some of posts you might have missed. Just click the titles below for more. Read the replies too as there’s lots of good content there.
You must be a member of our Facebook Support Group to see these posts. If you aren’t a member, and have ALK-positive lung cancer, or love someone who does, please join here.
Note: it helps if you are already signed into Facebook on the device you’re using to see these posts.
Conversation of The Month
How Do You Cultivate Hope in Your Life?
About ALK and Your Community
How Do You Answer the “How Much Time Do You Have?” Question
History of ALK Lung Cancer by Dr. Shaw
ALK Positive Co-Founder taking a Break
Impact of TP53 Mutation in ALK
Tracking Cancer by Tumor Markers
Document: How to Make Appointments with Dr. Shaw and Dr Camidge
Document: ALK Oncologists by State *(USA)
Studies and Recent Research
Pattern: Patient Donated Tissue or Fluid to Advance Lung Cancer Research
Sherlock-lung: A Genomic Epidemiologic Study of Lung Cancer in Never Smokers
Updated NCCN Patient Guidelines for Metastatic NSCLC
West Wind Podcast: Dr. Camidge on NCCN Guidelines, New Research and Partnering with Patient Groups
Understanding Resistance in ALK+ NSCLC: SPACEWALK Q&A
Submutations: Acquired or Primary Resistance
How Lung Cancer Spreads: Antioxidants Implicated
Treatment and Side Effects
High Dose Radiation Therapy Improves Outcomes
Single Dose Radiation for Bone Metasteses
PET Scan Caught Progression, CT Scan Did Not!
Targeted Therapy and Living with Cancer Videos by Dr. Camidge
Changes in Metabolism of Drugs on TKIs
Husband on Alectinib, Need to Wear Condoms?
Lorlatinib
Cognitive Effects of Lorlatinib
Hallucinations and other Side Effects of Lorlatinib
Increased Energy on Lorlatinib
Lost Lorlatinib! Prescription Insurance Coverage
Alectinib
Reintroduction of Alectinib after TKI induced Pulmonitis
Disappearing Fingerprints on Alectinib
Lower Dose of Alectinib, Does it Still Work?
Weight Gain in Stomach Area on Alectinib
Ankle Ice Wrap Works Wonders for Feet Swelling
Cannabis and CBD
Full Course, High Dose THC as Treatment
Oldies but Goodies
Analysis of Group Survey Results
Have Progression? Enroll in the FREE Spacewalk Study (US & Puerto Rico)